Get Prepared

We are looking forward to meeting you

Come prepared for your first appointment

The Tulane Hypermobility and Ehlers-Danlos Syndrome (EDS) clinic team is looking forward to meeting with you and helping you achieve your goals. Because hypermobility and EDS can be complicated there are a few steps we would like you to complete before your first visit. Taking these steps ahead of time will allow us to review your medical history and begin developing a plan even before your arrival to the hypermobility clinic. We know it can be cumbersome, but our goal is to help to reduce your burden over time while helping you feel better.

  • Schedule your appointment and mark your calendar! We are booked many months in advance, so the sooner you schedule the sooner we can see you.

  • We will send you a link to fill out your paperwork 3 weeks before your appointment. You will have 7 days to fill it out or we will cancel your appointment.

  • We will send you a link to upload your medical records. We want everything: x-rays, MRIs, medical notes, medications, supplements, therapy that you have tried, etc.

  • Wear comfortable, workout-type of clothing. You will be getting a thorough physical exam which will be focused on assessing your degree of hypermobility. Please avoid wearing restrictive clothing.

  • Get excited! We are hoping to make your future brighter with both a diagnostic assessment and a fresh start with a treatment plan tailored to your individual needs.

  • Spread the word! This specialty clinic needs support from you and others to be able to continue to provide the comprehensive care you deserve. Awareness and fundraising helps fund clinical support, as well as, research in the field of hypermobility and Ehlers-Danlos Syndrome, which will contribute to your health and peace of mind.

In the mean time…

We thank you for your patience. Check out other resources on our site, or other great information from the Ehlers-Danlos Society.

SUPPORT THE TULANE EDS RESEARCH FUND

Research on hypermobility and Ehlers-Danlos Syndromes is far behind other medical diagnoses. It takes the voice of the patient and the support of the community to fund research projects that will allow increased awareness, development of diagnostic criteria and evidence-based treatment protocols.

Donate Here