Hypermobility and Ehlers-Danlos Blog2021-04-23T12:13:21+00:00

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Ehlers-Danlos Patient Story: Elizabeth Boh

Patient Story Elizabeth Boh Her Story In December 2020, at the age of 59, I was diagnosed with Ehlers-Danlos Syndrome - hypermobility type.  I was fortunate to have found and seen Dr. Jacques Courseault, MD, CAQSM, at Tulane University School of Medicine, and he was the one who put all the pieces of the puzzle together and confirmed my diagnosis. Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts, such as the skin, muscles and [...]

Ehlers-Danlos Syndrome 101

Hypermobility is a "Thing" Ehlers-Danlos Syndrome 101 Basics of Ehlers-Danlos Syndrome Ehlers-Danlos Syndrome (EDS) is an umbrella term for a heterogeneous group of inherited connective tissue disorders characterized by symptoms including, but not limited to, skin hyperextensibility, joint hypermobility, and vascular fragility.1 It is a result of genetic mutations that cause defects in the formation of types I, III, and/or V collagen, which can manifest with pathologies in collagen-rich tissues like skin, tendons, ligaments, joints, and blood vessels.1 The variety of [...]

Next Steps

The Seed Has Been Planted Similar to planting a new plant, you have just planted a seed towards a new life. For you to blossom, it will take nurturing, some pruning, patience and maintenance. Next Steps You finally made it through your appointment and a lot was probably thrown at you! We know it's a lot, and this is why we developed this clinic to both take care of you, but to also educate you about hypermobility and Ehlers-Danlos syndromes. Each [...]

First Appointment Tips

Get Prepared We are looking forward to meeting you Come prepared for your first appointment The Tulane Hypermobility and Ehlers-Danlos Syndrome (EDS) clinic team is looking forward to meeting with you and helping you achieve your goals. Because hypermobility and EDS can be complicated there are a few steps we would like you to complete before your first visit. Taking these steps ahead of time will allow us to review your medical history and begin developing a plan even before your [...]

SUPPORT THE TULANE EDS RESEARCH FUND

Research on hypermobility and Ehlers-Danlos Syndromes is far behind other medical diagnoses. It takes the voice of the patient and the support of the community to fund research projects that will allow increased awareness, development of diagnostic criteria and evidence-based treatment protocols.

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