Ehlers-Danlos Patient Story: Elizabeth Boh
Patient Story Elizabeth Boh Her Story In December 2020, at the age of 59, I was diagnosed with Ehlers-Danlos Syndrome - hypermobility type. I was fortunate to have found and seen Dr. Jacques Courseault, MD, CAQSM, at Tulane University School of Medicine, and he was the one who put all the pieces of the puzzle together and confirmed my diagnosis. Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts, such as the skin, muscles and [...]
Ehlers-Danlos Syndrome 101
Hypermobility is a "Thing" Ehlers-Danlos Syndrome 101 Basics of Ehlers-Danlos Syndrome Ehlers-Danlos Syndrome (EDS) is an umbrella term for a heterogeneous group of inherited connective tissue disorders characterized by symptoms including, but not limited to, skin hyperextensibility, joint hypermobility, and vascular fragility.1 It is a result of genetic mutations that cause defects in the formation of types I, III, and/or V collagen, which can manifest with pathologies in collagen-rich tissues like skin, tendons, ligaments, joints, and blood vessels.1 The variety of [...]
Next Steps
The Seed Has Been Planted Similar to planting a new plant, you have just planted a seed towards a new life. For you to blossom, it will take nurturing, some pruning, patience and maintenance. Next Steps You finally made it through your appointment and a lot was probably thrown at you! We know it's a lot, and this is why we developed this clinic to both take care of you, but to also educate you about hypermobility and Ehlers-Danlos syndromes. Each [...]
Hypermobility and Ehlers-Danlos Syndrome Specialists Directory
Ehlers-Danlos Syndrome Providers Dysautonomia/POTS Providers
First Appointment Tips
Get Prepared We are looking forward to meeting you Come prepared for your first appointment The Tulane Hypermobility and Ehlers-Danlos Syndrome (EDS) clinic team is looking forward to meeting with you and helping you achieve your goals. Because hypermobility and EDS can be complicated there are a few steps we would like you to complete before your first visit. Taking these steps ahead of time will allow us to review your medical history and begin developing a plan even before your [...]