Hypermobility and Ehlers-Danlos Blog2021-04-23T12:13:21+00:00

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Understanding the Basics of Dysautonomia

Hydration Is Key Dysautonomia requires ongoing treatment Understanding dysautonomia You need water with electrolytes to get blood in the right place in your body. Dysautonomia is a “misfiring” of the cardiovascular system. A subset of dysautonomia is called postural orthostatic tachycardia syndrome (POTS). Hypovolemia is a term that means low blood volume. Low blood volume can come from being dehydrated, or not having enough blood in the right part of your body. For example, you may drink enough water, but the [...]

Tulane Family Dentistry for EDS Dental Expertise

EDS Dentists Here to Help We are looking forward to meeting you EDS Dental Care Experts Dr. William Shelton and Dr. Alexis Russell are the owners of Tulane Family Dentistry, an energetic, friendly, welcoming, vibrant dental office that serves to provide the highest quality dental care to our patients young and old, including pediatrics. We are passionate about respecting the individual needs of our patients, which begins with listening to our patients and educating them about their oral and systemic health. [...]

Brief Overview of Hypermobile-Type, Ehlers-Danlos Syndrome

Hypermobile-Type, Ehlers-Danlos Syndrome Learn the basics of a common body-type Hypermobile-Type Ehlers-Danlos Syndrome Hypermobile-type, Ehlers-Danlos Syndrome Hypermobile-type, Ehlers-Danlos Syndrome (hEDS) is one of 13 subtypes, and is not rare. Connelly et al. report that thirty percent of the population is hypermobile and a large portion of this group is noted to have “systemic effects secondary to connective tissue fragility." Look at all of the best athletes; pitchers, gymnasts, swimmers, runners tend to be hypermobile. hEDS is passed down from your parents. [...]

Nutrition and Ehlers-Danlos Syndrome

Choose Wisely Love your body, treat it right Nutrition and Ehlers-Danlos Syndrome Kathy Garvey, MS, MBA, RD garveynutrition.com Nutrition and Ehlers-Danlos Syndrome  The links between nutrition and Ehlers-Danlos Syndrome (EDS) are undeniable.  So many complications and symptoms of EDS are gastrointestinal and food-reactive in nature that one would expect there to be a best diet for the condition. Unfortunately, there is no one, simple solution, but rather some general guidelines that can then be followed by a targeted, individualized [...]

Surgical and Anesthetic Precautions for Hypermobile and EDS Patients

Prepare for Surgery Certain precautions can improve outcomes Prepare yourself and surgical team for surgery The Tulane Hypermobility and Ehlers-Danlos Syndrome (EDS) clinic team is here to help prevent surgical complications in patients with Ehlers-Danlos syndrome. The most common complications that we have noticed involve prolonged wound healing and scar tissue formation around the surgical site or intra-abdominal. Co-morbidities common with EDS include POTS, mast cell activation spectrum disorders (anaphylaxis, allergies to medications) and complex regional pain syndrome. Here are a [...]

An EDS Counselor Like None Other

Krewe Wellness An EDS Counselor who is here for you Our Star Ehlers-Danlos Counselor Kayla Scott is the Founder of Krewe Wellness I have always been accident prone and flexible. It wasn’t unusual for me to fall UP stairs (yes, I defy gravity) and lose balance while walking. It was commonplace for me to have an unexplained bruise, feel dizzy out of nowhere, or trip and fall outside the Superdome while walking with friends. It was fall 2021, when [...]

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Research on hypermobility and Ehlers-Danlos Syndromes is far behind other medical diagnoses. It takes the voice of the patient and the support of the community to fund research projects that will allow increased awareness, development of diagnostic criteria and evidence-based treatment protocols.

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