Hypermobility and Ehlers-Danlos Blog2021-04-23T12:13:21+00:00

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Nutrition and Ehlers-Danlos Syndrome

Choose Wisely Love your body, treat it right Nutrition and Ehlers-Danlos Syndrome Kathy Garvey, MS, MBA, RD garveynutrition.com Nutrition and Ehlers-Danlos Syndrome  The links between nutrition and Ehlers-Danlos Syndrome (EDS) are undeniable.  So many complications and symptoms of EDS are gastrointestinal and food-reactive in nature that one would expect there to be a best diet for the condition. Unfortunately, there is no one, simple solution, but rather some general guidelines that can then be followed by a targeted, individualized [...]

Surgical and Anesthetic Precautions for Hypermobile and EDS Patients

Prepare for Surgery Certain precautions can improve outcomes Prepare yourself and surgical team for surgery The Tulane Hypermobility and Ehlers-Danlos Syndrome (EDS) clinic team is here to help prevent surgical complications in patients with Ehlers-Danlos syndrome. The most common complications that we have noticed involve prolonged wound healing and scar tissue formation around the surgical site or intra-abdominal. Co-morbidities common with EDS include POTS, mast cell activation spectrum disorders (anaphylaxis, allergies to medications) and complex regional pain syndrome. Here are a [...]

An EDS Counselor Like None Other

Krewe Wellness An EDS Counselor who is here for you Our Star Ehlers-Danlos Counselor Kayla Scott is the Founder of Krewe Wellness I have always been accident prone and flexible. It wasn’t unusual for me to fall UP stairs (yes, I defy gravity) and lose balance while walking. It was commonplace for me to have an unexplained bruise, feel dizzy out of nowhere, or trip and fall outside the Superdome while walking with friends. It was fall 2021, when [...]

Surviving Medical School with Ehlers-Danlos Syndrome

Patient Story Danielle Purtell Her Story Danielle Purtell is a medical student at Tulane University School of Medicine who has survived medical school with Ehlers-Danlos Syndrome. She will graduate in 2022 and is excited to complete a Family Medicine residency. As someone with chronic illness and invisible disability, Danielle knows firsthand the importance of a strong and compassionate primary care doctor, and is honored by the opportunity to become one. She holds student leadership positions with the Louisiana Academy of Family [...]

Massage Keeps Fascia Healthy

The Art of Massage Working the connective tissue is key Daily massage can provide temporary relief Regular massage is important if you are hypermobile or have a connective tissue disorder, such as Ehlers-Danlos Syndrome. Fascia, the supportive connective tissue of the body, surrounds muscle, bones, tendons, ligaments and even internal organs. If there is a problem with fascia in the body it can cause significant pain because fascia has many bundles of nerve fibers that run through it. Interestingly enough, at [...]

Best Shoes for Hypermobile Ehlers-Danlos Syndrome

Foot Care Stability is key for hypermobility Wearing the proper shoes may change your life Stability is the most important method to treat many connective tissue problems associated with hypermobility spectrum disorders and Ehlers-Danlos syndrome. Because ligaments, tendons and joints are loose, hypermobile people have to work extra hard to maintain joint stability. Developing a strong basis with a hypermobile-trained physical therapist is key, but there are things you can do to help yourself. To start, wearing the proper shoe is [...]

SUPPORT THE TULANE EDS RESEARCH FUND

Research on hypermobility and Ehlers-Danlos Syndromes is far behind other medical diagnoses. It takes the voice of the patient and the support of the community to fund research projects that will allow increased awareness, development of diagnostic criteria and evidence-based treatment protocols.

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