Your Diagnosis Journey Getting Diagnosed With Hypermobility: a roadmap, not a dead end The path to a hypermobility spectrum disorder (HSD) or Ehlers-Danlos syndrome (EDS) diagnosis is famously long — the average patient waits years and sees multiple providers before anyone connects the dots. It does not have to be that way. This guide [...]
Fascia · Hypermobility · Connective Tissue 250 years of fascia — and what it means for hypermobile bodies. The tissue anatomists once scraped away and discarded is now called the body’s largest sensory organ. If you live with hypermobility, that shift changes the whole story. In July 1776, a new republic declared [...]
Hydration Is Key Dysautonomia requires ongoing treatment Understanding dysautonomia You need water with electrolytes to get blood in the right place in your body. Dysautonomia is a “misfiring” of the cardiovascular system. A subset of dysautonomia is called postural orthostatic tachycardia syndrome (POTS). Hypovolemia is a term that [...]
Hypermobile-Type, Ehlers-Danlos Syndrome Learn the basics of a common body-type Hypermobile-Type Ehlers-Danlos Syndrome Hypermobile-type, Ehlers-Danlos Syndrome Hypermobile-type, Ehlers-Danlos Syndrome (hEDS) is one of 13 subtypes and is not rare. Connelly et al. report that thirty percent of the population is hypermobile and a large portion of this group [...]
Choose Wisely Love your body, treat it right Nutrition and Ehlers-Danlos Syndrome Kathy Garvey, MS, MBA, RD garveynutrition.com Nutrition and Ehlers-Danlos Syndrome The links between nutrition and Ehlers-Danlos Syndrome (EDS) are undeniable. So many complications and symptoms of EDS are gastrointestinal and food-reactive in nature that one would expect [...]
Prepare for Surgery Certain precautions can improve outcomes Prepare yourself and surgical team for surgery The Tulane Hypermobility and Ehlers-Danlos Syndrome (EDS) clinic team is here to help prevent surgical complications in patients with Ehlers-Danlos syndrome. The most common complications that we have noticed involve prolonged wound healing [...]
The Art of Massage Working the connective tissue is key Daily massage can provide temporary relief Regular massage is important if you are hypermobile or have a connective tissue disorder, such as Ehlers-Danlos Syndrome. Fascia, the supportive connective tissue of the body, surrounds muscle, bones, tendons, ligaments, and [...]
EDS 101 · The Cornerstone Guide Ehlers-Danlos Is Not a Trend. It Is a Body Type. I get a version of this question almost every week, usually from a patient who is bracing for me to roll my eyes: “Is this even real, or is it just something everybody has suddenly decided they have?” [...]
