Choose Wisely Love your body, treat it right Nutrition and Ehlers-Danlos Syndrome Kathy Garvey, MS, MBA, RD garveynutrition.com Nutrition and Ehlers-Danlos Syndrome The links between nutrition and Ehlers-Danlos Syndrome (EDS) are undeniable. So many complications and symptoms of EDS are gastrointestinal and food-reactive in nature that [...]
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Prepare for Surgery Certain precautions can improve outcomes Prepare yourself and surgical team for surgery The Tulane Hypermobility and Ehlers-Danlos Syndrome (EDS) clinic team is here to help prevent surgical complications in patients with Ehlers-Danlos syndrome. The most common complications that we have noticed involve prolonged wound healing [...]
Krewe Wellness An EDS Counselor who is here for you Our Star Ehlers-Danlos Counselor Kayla Scott is the Founder of Krewe Wellness I have always been accident prone and flexible. It wasn’t unusual for me to fall UP stairs (yes, I defy gravity) and lose balance [...]
Patient Story Danielle Purtell Her Story Danielle Purtell is a medical student at Tulane University School of Medicine who has survived medical school with Ehlers-Danlos Syndrome. She will graduate in 2022 and is excited to complete a Family Medicine residency. As someone with chronic illness and invisible disability, [...]
The Art of Massage Working the connective tissue is key Daily massage can provide temporary relief Regular massage is important if you are hypermobile or have a connective tissue disorder, such as Ehlers-Danlos Syndrome. Fascia, the supportive connective tissue of the body, surrounds muscle, bones, tendons, ligaments and [...]
Foot Care Stability is key for hypermobility Wearing the proper shoes may change your life Stability is the most important method to treat many connective tissue problems associated with hypermobility spectrum disorders and Ehlers-Danlos syndrome. Because ligaments, tendons and joints are loose, hypermobile people have to work extra [...]
Patient Story Elizabeth Boh Her Story In December 2020, at the age of 59, I was diagnosed with Ehlers-Danlos Syndrome - hypermobility type. I was fortunate to have found and seen Dr. Jacques Courseault, MD, CAQSM, at Tulane University School of Medicine, and he was the one who put all [...]
Hypermobility is a "Thing" Ehlers-Danlos Syndrome 101 Basics of Ehlers-Danlos Syndrome Ehlers-Danlos Syndrome (EDS) is an umbrella term for a heterogeneous group of inherited connective tissue disorders characterized by symptoms including, but not limited to, skin hyperextensibility, joint hypermobility, and vascular fragility.1 It is a result of genetic [...]
The Seed Has Been Planted Similar to planting a new plant, you have just planted a seed towards a new life. For you to blossom, it will take nurturing, some pruning, patience and maintenance. Next Steps You finally made it through your appointment and a lot was probably [...]
Ehlers-Danlos Syndrome Providers Dysautonomia/POTS Providers